Dementia Awareness Week

This week is Dementia Awareness Week and the theme this year is ‘Unite against dementia’. It is often said, ‘when a diagnosis of dementia is given, it is given to the whole family’ and therefore, uniting to support carers and families of a person with dementia must remain a top priority.

It is estimated that dementia costs the UK economy £26 billion and this figure is set to rise. Informal care provided, unpaid, by family and friends to people with dementia has been valued at £11.6 billion – 44% of this cost (Alzheimer’s Research UK). Carers may spend many hours looking after relatives and friends with dementia. A carer recently said to me, “There are three eight hour shifts in a day, you know, and we cover them all”. It’s important that carers have access to breaks on a regular basis, whether this is from a care agency providing care to the person with dementia while the carer takes some time for themselves; or engaging the person with dementia in activities and groups where the carer knows they will be safe and stimulated.

Dementia is a complex, unpredictable, long term condition and carers may find themselves caring for many years. Carers of people with dementia who are over retirement age – a time when they should be able to relax and try new things – can find themselves working harder than ever.

“I am 89 now, I am supposed to be retired. I want to care for my wife but this is the hardest job I have ever done”

When speaking to a carer recently after a stressful event, they explained that carers tend to expect the unexpected. While caring can build resilience in carers, it’s important for us to remember that they are not invincible. In a recent Carers Trust survey, over 80% of carers aged 60 or over said they had at least one health condition themselves, with 83% directly attributing this health condition to their caring role.

It is clear that carers are vital to our society and our economy. They give up their time, social life, work and financial security to look after others. In return, we must ensure they get a better deal when it comes to their own health.

Carers Trust have been campaigning for local authorities to add a question to the free NHS Health Check which will enable carers to be identified earlier in their caring journey and offer them appropriate support. If you are in contact with your local Health & Wellbeing Board, ask them to consider this as an option, or raise it with your local Healthwatch.

Carers are renowned for not putting themselves first, but they must; and we must unite behind them and do more to make this possible. It is not selfish for carers to look after themselves, it is vital. After all, who is going to care if the carer no longer can?

If you are a carer, why not contact your local carers’ service to see what support is available for you? You can find your local service here. You could look at our Carers Road Map, a guide which provides advice and information along your caring journey. You could also download our ‘Time to think about you’ prompt card and put it somewhere visible as a daily reminder to think about you.

Blog by Louise Marks, Dementia Policy and Development Officer, Carers Trust


May 14, 2017 - Posted by | Dementia, Health, NHS, Older carers


  1. There should be more support for people caring for their elderly spouse. In the UK I feel the system is a shambles

    Comment by chris | June 18, 2017 | Reply

    • Carers Trust agree that older carers need better coordinated services, which also need to be easily accessible and well promoted. Our recent campaign asked councillors to approach their local Health and Wellbeing Boards to ask what steps they were taking to integrate services. Carers Trust are also working to highlight the importance of carers maintaining their own health, as if carers’ health is impacted by their caring role, there is a real risk of crisis and carer break down. If you are a carer and struggling to manage, tell your GP, or ask your local council for a Carer’s Assessment which can be reviewed yearly, or if your circumstances change. The assessment is an opportunity to consider your needs and will look at what support you need to continue to care; while looking after your own health. Your local carers’ service will be able to advise you on the assessment process; enter your postcode here to find their contact details.

      If you’d like to get more involved in taking action to improve things for carers please email and sign up to our campaigns newsletter so that you’re first to get our campaign news

      Comment by cleocarerstrust | June 21, 2017 | Reply

  2. I totally agree with you. Dementia caregivers also need help and some time to figure out that is going on and prepare for the future.

    Comment by Becky Grim | March 21, 2019 | Reply

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